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CP in your 30's

mrs_t
Tue, 24 Jul 2018 17:38:46 GMT

Hi! I'm looking for some advice on how to improve and maintain mobility on my approach to middle age! My CP affects my right side, predominantly my leg. In my teens and twenties, I largely just 'got on with it', occasionally remembered to see an Orthotist to get my shoe raises and suffered minor back ache. Now in my early thirties, I think I'm starting to pay for my complacency! I now need a two inch shoe raise (it was only one inch 10 years ago), I get pelvic pain if I exercise and sciatic pain down my left leg. I've started receiving sports massage in an attempt to get stretched and straightened out but I was wondering if anyone had any advice or recommendations on what has helped with mobility? Any specific exercise or sport? My Orthotist would like me to wear a splint again, but only once I've regained some movement in my ankle to be able to get the damn thing on!! Many thanks!

eli_be332
Mon, 18 Mar 2019 22:48:55 GMT

Hi! I might be able to offer some advice as a sufferer of CP myself - though I'm only 18. Mine is predominantly in both my legs and I suffer from back pain and uncomfortable spasms. Anyway, hiking or going on walks has helped me with my pain, as well as ankle weights as when I use them, the painful spasms and back pain seem to decrease for a long time if I'm constant about it although it hurts at the start. Also, simple stretched help as well, such as wall stretches and straightening my legs with my back fully against the wall. (I won't lie, it's ridiculously painful at first - but then again, it gets better pretty quickly). I hope this helps in some way, and sorry if it doesn't - just thought it would be good to give you something according to my own experience.

phil82
Fri, 29 Mar 2019 15:08:04 GMT

How strange I was just searching for a CP forum to ask if my syptoms sound like CP and you have just summed me up perfectly. I have had muscle tightness since I was a tennager and very short rigid muscles. In my 20s I just got on with it but a couple of years ago when I was about 34 things seemed to get worse a lot of back/neck pain and now I am getting a lot of pain in my arms and tightness in my hands also my hips are now really tight probably from my funny walking gait. I now wear orthtocis but its always been put down to a biomechanical problem with having high arches. However as things seem to be getting progresivley worse I went to the drs and after them telling me there was nothing wrong with me as my muscles were strong and had lots of tone a NHS Physio saw me and was adamant it must be a neuro problem as just a high arch foot couldn't cause that much tightness. I have just been refered to Rheumatology but fully expect I will end up seeing a neurologist at some point. The past couple of years I have been really active lots of running well as much as I can but I have my limitations but never knew why, over xmas I flogged myself pretty hard going for PB's and think I have paid the price now. I do lots of stretching up to 3 x a day and now started pilates as well as lots of Physio. It all helps a bit but I have some muscles where it doesn't mater how much physio I have they never seem to get any better especially my (calfs, quads and hamstrings) could this by Hypertonia?. I would recomend getting a foam roller if you have the upper body strength to use one and roll out your muscles and make sure they are knott free also make sure you have strong core muscles I seem to have lost all my core strength which causes a whole load of knock on issues like anterior tilted pelvis etc .I'm not sure static stretching really works but more dynamic stretching like pilates etc where there is movement as well seems to engage the muscles more and have more of an effect for me.

jackpeter
Mon, 08 Apr 2019 13:07:13 GMT

I am an adult with a cerebral palsy. Luckily it’s a mild version of it. I graduated from University,. Since I remember, I had physiotherapy. But now I'm afraid that despite my efforts, I won't be as fit as few years back I also work for a company, which sells medical equipment; most of employees have some kind of health issue, so we do know the challenges people with disabilities in everyday life. If you need the medical equipment of any kind feel free to visit our website. https://helpik24.pl