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my 11 year old daughter has

maryguarascio
Wed, 31 Jan 2018 01:28:30 GMT

tested positive for p41 and p23, yet western blot says negative lyme. She has struggled with neurological tics such as eye blinking, bladder spasms, racing heart at rest, palpitations.

maryguarascio
Wed, 31 Jan 2018 01:37:17 GMT

thank you

deborahmerrillconners
Wed, 31 Jan 2018 01:43:23 GMT

My Western Blot came up with one abnormal lyme band. Consequently, my MD told me I did not have lyme. My symptoms on the other hand were lyme/babesia and after 2 years of no treatment, I now am seeing a lyme literate Naturopath who is treating me with antibiotics and herbals. It is helping me tremendously.

Dr. Daniel Cameron
Wed, 21 Mar 2018 10:56:33 GMT

The bands help doctors some of the time. Clinical judgement is necessary in other cases. Mary, you should include a look at autonomic issues in addition to seeing a cardiologist. You should look at PANDAS and PANS issues for the tics. PANDAS and PANS have also been seen in Lyme and tick-borne diseases.

maryguarascio
Wed, 21 Mar 2018 11:30:48 GMT

Thank you Dr Cameron. She is getting treatment for PANS/PANDAS, although controversial with some local Dr's as is Lyme, we left our area and found Dr T. to take care of her.❤ She is taking rifampin and clindamycin and previously valacyclovir and zithromax....her tics have started to subside. I am hoping that with her PANS/PANDAS treatment it will not only take care of the high levels of strept, coxsackie viruses, mycoplasma, HHV6, (&others) that were found but also take care of the p41 and p23 so she will not end up with chronic Lyme