winning-the-fight

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Caregivers

Winning the Fight Moderator
Wed, 19 Oct 2016 18:24:52 GMT

Caregivers, please share your experiences by submitting posts under this topic.

cricuz
Wed, 20 Mar 2019 01:14:09 GMT

My mom (age 72) has been recently diagnosed with ALS. Slurred speech started in July 2017 while taking a very strong (prescribed) medication for tremors. The doctor reduced the dosage and she eventually stopped taking the medication altogether. She started slurring more words by the end of the year and choking once-in-awhile. [yes, I cannot help but blame the ALS symptoms on that medication...some sort of toxicity]...She was suspected of ALS in April 2018 and diagnosed by two other neurologists November 2018 and January 2019. She has difficulties speaking (we communicate in writing) and swallowing. We took the natural remedies path from the beginning and started seeing alternative medicine practitioners since summer of 2018. I learnt quite a bit since mom got the horrific diagnosis and always felt that she will snap out of it sooner rather than later, but also never stopped looking for a cure and most importantly an explanation of how this could have happened to an otherwise healthy and very strong individual. She underwent quite a bit of testing in our quest to elimina te the ALS diagnosis (very proud of her...quite a trooper!). She tested negative for Lyme but still going to a specialist next week. It feels like a long, confusing and overwhelming ride so far but mom and I are not planning on giving up the fight anytime soon if ever and I for one am humbled by all that I have learnt so far and by all the strong fighters out there (PALS or caregivers) that are helping giving hope and strength to so many more. We are now ready to embark on the DP bandwagon and are looking forward to improvements in her symptoms. We already gave her Glutathione IV, Ubiquinol, NAC, etc but maybe too low doses. Thank you for putting so much effort and time into creating this protocol.

rainey340
Tue, 03 Sep 2019 17:13:56 GMT

My husband is being seen at UVA now. His EMG turned out so well the Dr is not wanting to label his case. He has been on DP for 3 weeks now and thankfully has regained some of what he lost. Thank you so much. The Dr says there is a chance his is PLS. Either way, the DP has given him the ability to eat again normaly. And to rest at night,

rainey340
Thu, 05 Sep 2019 16:05:11 GMT

I meant to include this link before to a file I have on the cloud of my Husbands progress. Sat will be 1 month on the DP. I have him registered here on the sight and I will update his progress when his month is up. https://1drv.ms/u/s!AjdAaCO9EuipgaRtms4yFx_baWCZ2g?e=CHUR23