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How Deanna is doing now, in 2019?

domagojbarac
Sun, 27 Jan 2019 11:07:00 GMT

hello, maybe is not appropriate question, but i wonder how is she doing now? all i found was a same video on youtube, agan, agan and again... no pdates. does she walk, speak...

vmtedone
Mon, 28 Jan 2019 19:41:44 GMT

Thank you for asking. Under latest developments you will read that her Borrelia infection is cured. There has been no progress of her disease in a year since she has been treated with the pulsed antibiotic method. Since her symptom onset was in 2007 and we did not know that Borrelia was the cause of her ALS until 2015 Her disease progressed between those dates but was slowed down by The DP. She has functional limitations but we expect her function to improve with the stem cell treatments she will receive in February. We will report her progress on the web site. ALS is now a curable disease. Deanna is no longer on antibiotics but continues on the DP to enhance energy production the cells. Dr.T.

domagojbarac
Tue, 29 Jan 2019 20:48:41 GMT

i'm glad to read this, but what you mean by "ALS is now a curable disease."?

vmtedone
Tue, 29 Jan 2019 20:51:13 GMT

Read latest developments on this web site.

domagojbarac
Tue, 29 Jan 2019 20:51:34 GMT

thanks!!

domagojbarac
Tue, 29 Jan 2019 21:04:36 GMT

maybe it is cause english is not my native language, but it seems that all is about borrelia and it's cure with stem cells which "should be" work. i tested myself for borrelia for a few times in past 3 years and i'm negative. obviously it is about aggregation of protein/tdp-43, misfold, whatever, but antibiotics can not help. how do you relate brainstorm's project for deanna? they stated it is not cure, just treatment...

domagojbarac
Tue, 29 Jan 2019 21:36:18 GMT

um... or you just want to say that borrelia IS the only cause of ALS, but it is not easy detectable? i am reading all you wrote, and it makes sence. simply, all pals have nothing in common. i reviewed many pals, many profiles of pals, i hit the wall with my forehad many times, just can not understand, als can not be without reason!!!... recovery is a possible through s.cells/ngf for sure if als is stopped. i am left by doctors "to get my affairs in order ". therapy? rilutek and plenty of rest. i take neither. just investigate and go to gym, moderate. i dont fight for powered wheelchair, AFO etc... this is not solution. before i die, i want to contribute in anyway... please dr.t. reply... say that i am wrong, say whatever and that will be kind of my direction. i will run untill i fall. when i fall, THEN game is over. thanks.

domagojbarac
Tue, 29 Jan 2019 22:20:53 GMT

ok, even if it is not detected, can it be treated with doxycycline? what about sals and fals?

vmtedone
Sat, 02 Feb 2019 14:29:13 GMT

Only specialty labs have the ability to test for Borrelia see IGenex.

domagojbarac
Tue, 05 Feb 2019 22:53:19 GMT

Which pannel should I buy to test borrelia from blood only?

vmtedone
Tue, 05 Feb 2019 23:02:13 GMT

You can call Igenex and ask them your question